I should have provided an update sooner, but that one instance of "pressure hives" was not the start of a recurrence. I have been avoiding putting pressure on myself like that though, to avoid another possible case. Very happy to say that I am still hives-free.
However, I have recently received to this blog several posts (via comments) and messages from some who have found "cures" in homeopathic treatments. I have deleted these from my blog.
I have nothing against homeopathic medicine per se, and I do believe that it can be beneficial in certain cases. But when it comes to the issue of chronic idiopathic urticaria, homeopathy is not a silver bullet and in fact can be harmful. Chronic hives of this nature seem to stem from a complex "misfire" in the body's allergic and immune response system. I believe that its primary triggers are any combination of medications, foods, stresses, and immunologic diseases that find some odd interplay with each other.
Homeopathic treatments can be a rabbit hole. I personally had experience with this, in a desperate search for a way to rid myself of the hives, and was put on a very odd, highly restrictive diet that I ultimately abandoned after a few weeks. They told me that if I stayed on it for 4-6 months, the hives would go away. Well, guess what? After not being on that diet, my hives went away 3 months after I saw the homeopathic person. My belief today is that they just ran their course, as my body adjusted to find its way back to homeostasis. (http://en.wikipedia.org/wiki/Homeostasis)
My best advice now is similar to what I've given in the past:
1) Try to maintain as healthy a lifestyle as you can, in moderation: diet, physical activity, no smoking etc.
2) Examine any recent additions or changes of medications and supplements, even 1-2 months prior to hives onset.
3) Examine any recent dietary changes or use of chemical-based consumer products (soaps, detergents) within 1-2 months prior to hives onset.
4) Find a good doctor who will check autoimmune markers, often called an autoimmune panel of bloodwork.
5) It's worth visiting an allergist to get food and environmental allergy testing. The body's allergy sensitivities can change every several years, so it's worth seeing if yours has too. (http://online.wsj.com/news/articles/SB10001424053111903480904576510302458640840)
I am a huge proponent of evidence-based medicine, but I also believe in natural management approaches. With my 5 points listed above, you don't see me advocating high-dosing of antihistamines and steroids, which I certainly tried with little success when I actively had the hives. I do advocate gathering information to rule in or out things that may be the triggers. My goal was always to address the source of the issue, not just try to mask the symptoms.
Good luck!
My story in understanding and living with my chronic idiopathic urticaria (CIU), otherwise known as random hives of an unknown underlying cause. I am a woman in her early 40s, also diagnosed with Hashimoto's (an autoimmune disease that affects thyroid), Endometriosis, Hay Fever (seasonal allergies), and Anxiety. My chronic hives began on June 2, 2012 following a highly stressful 9 month period in my life. This blog follows my quest for answers and relief.
Wednesday, August 20, 2014
Tuesday, June 10, 2014
1.5 Years Later, the Hives Visit Again
Two years ago around exactly this time (early June), chronic hives started for me. I had them for about 6-7 months before they simply faded away. And I haven't had them for the past 1.5 years.
When I did have them, they were fairly mild on most days. They were mostly on my upper body, including my undergarment area. I never had the angio-edema versions, just the pesky pink wheals. I also often would get "pressure hives" clustered around my waist area and braline areas. And sweating or heat would make the hives much worse, so I spent a good bit of that summer inside in the AC and taking lukewarm showers.
I later came to believe that the hives were the result of one of two medications I had started one month prior: Either a birth control pill or an antidepressant to treat my anxiety, but I can't tell you which one and none of the long list of doctors I met with ever brought this up to me. I believe that my body simply finally got used to whichever medication it was and stopped reacting allergically to it. I remained on both medications even as the hives went away. (I have since changed to a different birth control, and have been on that for over a year now.)
Last night, I got pressure urticaria along my lower belly after sitting on the couch with my laptop on my lap for over an hour. I also had some tight-fitting jeans on too. The urticaria were raised, pink and elongated where the 'pressure' of the laptop's edge was pressing against my body for that extended period of time.
I did get quite anxious -- are the hives returning? Will I have to endure a long period with them again, especially over the summer again? Does the timing mean anything?
Except this time, there is NOTHING different going on. I haven't recently changed medications. I have nothing different going on in my life. No new foods, detergents, etc.
I took an antihistamine before bed, and I will dose up on them for the next few days, even if no more hives appear. I have read and learned from my own experience, that keeping them at bay is best. This morning when I woke, as expected, the urticaria were gone and I saw no new hives on my body. I still took a lukewarm shower though! I will also not wear tight clothes or be in the heat for the next few days.
I hope I won't be posting more routinely to this blog once again.
When I did have them, they were fairly mild on most days. They were mostly on my upper body, including my undergarment area. I never had the angio-edema versions, just the pesky pink wheals. I also often would get "pressure hives" clustered around my waist area and braline areas. And sweating or heat would make the hives much worse, so I spent a good bit of that summer inside in the AC and taking lukewarm showers.
I later came to believe that the hives were the result of one of two medications I had started one month prior: Either a birth control pill or an antidepressant to treat my anxiety, but I can't tell you which one and none of the long list of doctors I met with ever brought this up to me. I believe that my body simply finally got used to whichever medication it was and stopped reacting allergically to it. I remained on both medications even as the hives went away. (I have since changed to a different birth control, and have been on that for over a year now.)
Last night, I got pressure urticaria along my lower belly after sitting on the couch with my laptop on my lap for over an hour. I also had some tight-fitting jeans on too. The urticaria were raised, pink and elongated where the 'pressure' of the laptop's edge was pressing against my body for that extended period of time.
I did get quite anxious -- are the hives returning? Will I have to endure a long period with them again, especially over the summer again? Does the timing mean anything?
Except this time, there is NOTHING different going on. I haven't recently changed medications. I have nothing different going on in my life. No new foods, detergents, etc.
I took an antihistamine before bed, and I will dose up on them for the next few days, even if no more hives appear. I have read and learned from my own experience, that keeping them at bay is best. This morning when I woke, as expected, the urticaria were gone and I saw no new hives on my body. I still took a lukewarm shower though! I will also not wear tight clothes or be in the heat for the next few days.
I hope I won't be posting more routinely to this blog once again.
Thursday, January 9, 2014
Over 1 Year Hives Free - Will They Come Back?
While I am more than thrilled to report that I am 13.5 months hives-free, a reader of my blog posted a comment the other day that has me wondering: How long will this remission last? He noted how his come and go, sometimes a few years in between bouts. It makes me wonder if that will be my future too.
For now, I just find that every few days, I still scan my body for those pesky hives in fearful anticipation that they will return. And sigh a relief that my skin is all clear.
Each time that I have to change to a different medication (I hate that the pharmacy is always switching from one generic to the next), I worry that it will trigger a hives reaction.
Or certain foods make me worry. Or new perfunes or lotions.
I am less fearful and nervous as time passes. The stress is reducing.
But the question remains: Will I be caught off-guard again one day? And if so, my theory that mine were due to a medication will fly right out the window... and we'll be right back to "idiopathic."
Thanks for reading...
For now, I just find that every few days, I still scan my body for those pesky hives in fearful anticipation that they will return. And sigh a relief that my skin is all clear.
Each time that I have to change to a different medication (I hate that the pharmacy is always switching from one generic to the next), I worry that it will trigger a hives reaction.
Or certain foods make me worry. Or new perfunes or lotions.
I am less fearful and nervous as time passes. The stress is reducing.
But the question remains: Will I be caught off-guard again one day? And if so, my theory that mine were due to a medication will fly right out the window... and we'll be right back to "idiopathic."
Thanks for reading...
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